一個(gè)患自閉癥的弟弟
A Sibling with Autism
身邊帶著一個(gè)患有自閉癥的弟弟是一種什么樣的體驗(yàn)?對(duì)于這個(gè)特殊的弟弟,這位姐姐又是怎么想的呢?一起來(lái)聽(tīng)聽(tīng)她的心聲吧!
My brother Pat is1)brilliant. He is priceless. His brain works in ways that mine never will. But he has autism.
I have had a unique life. I grew up with a little brother whose needs were always more important than mine. To be the sister of a child with autism means every day is crazy. You never know what to expect. It’s stressful. You grow up very quickly. You deal with a lot of emotions and anxieties that never cross the minds of other 8-year-olds. However, what you gain are2)irreplaceable life experiences. They turn you into a strong, independent and3)caring adult who knows the true meaning of love, hard work, patience and family.
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autism(孤獨(dú)癥),又稱自閉癥,是廣泛性發(fā)育障礙的代表性疾病。該癥患兒在言語(yǔ)交流方面存在明顯障礙,且對(duì)一般兒童所喜愛(ài)的玩具和游戲缺乏興趣。該病癥為慢性病程,約2/3患兒在成年后無(wú)法獨(dú)立生活,需要終生受人照顧和養(yǎng)護(hù)。
詞組加油站
deal with 克服(壞情緒)
turn into 轉(zhuǎn)變?yōu)?/p>
1) brilliant ['br?l??nt] adj. 出色的,聰明的
3) caring ['ke?r??] adj. 體貼的
詞組加油站
make progress 取得進(jìn)展trade…for…
以……換得……
5) genuinely ['d?enj??nl?] adv. 真正地
When I was little, the doctors said Pat would never speak. I wondered if my brother would ever be able to talk to me and tell me how he felt. I wondered if he even knew I was his sister and what it meant to have a big sister.
Gradually, he proved everyone wrong and he spoke! Pat now rides his bike all by himself. He also4)volunteers at the library and the hospital. He has made progress that could inspire anyone on their darkest days. I do know that there is nothing Pat can’t do. And if he lives with me for the rest of my life, I will be the luckiest big sister in the whole world.
And to my brother, I love you more than words will ever be able to describe. I would not trade you for anything. The struggles make us stronger. I am the luckiest girl in the world to have learned what life is5)genuinely about. It’s about love.
我的弟弟帕特十分出色,他是無(wú)價(jià)的。他大腦的運(yùn)作方式是我永遠(yuǎn)無(wú)法企及的。但他患有自閉癥。
在成長(zhǎng)過(guò)程中,身邊有一個(gè)患上自閉癥的弟弟讓我的生活與眾不同,他的需求總是比我的更為重要。成為自閉癥兒童的姐姐意味著每一天都是瘋狂的,你不知道接下來(lái)會(huì)發(fā)生些什么,壓力挺大的。你會(huì)迅速成長(zhǎng)起來(lái),需要面對(duì)種種情緒波動(dòng)、焦慮煩憂,而這些是其他八歲的同齡孩子根本不會(huì)想到的。然而你也是有收獲的,那便是無(wú)可替代的生活經(jīng)歷。你長(zhǎng)大成人,這些經(jīng)歷讓你變得堅(jiān)強(qiáng)、獨(dú)立、充滿關(guān)愛(ài)之心,會(huì)讓你知道愛(ài)、付出、耐心和家庭的真正意義。
在我小的時(shí)候,醫(yī)生們說(shuō)帕特永遠(yuǎn)也說(shuō)不了話。我不知道弟弟日后還能否和我交談,告訴我他的感受,也不清楚他到底有沒(méi)有意識(shí)到我是他的姐姐,以及有個(gè)姐姐意味著什么。
隨著日子一天天過(guò)去,他證明了早前人們的說(shuō)法都是錯(cuò)誤的,他開(kāi)口講話了!如今,帕特能自己騎自行車(chē)了,還在圖書(shū)館和醫(yī)院做著志愿者。他取得的進(jìn)步與成績(jī)足以鼓勵(lì)所有處于最陰郁時(shí)期的人們。我就知道帕特是可以做到任何事情的。如果余生他能和我永遠(yuǎn)生活在一起,我將會(huì)是全世界最幸運(yùn)的姐姐。
我想對(duì)弟弟說(shuō),我愛(ài)你,這種愛(ài)非語(yǔ)言所能表達(dá)。你是任何事物都無(wú)法替代的。挫折讓我們變得更堅(jiān)強(qiáng)。我是世界上最幸運(yùn)的女孩,領(lǐng)悟到了生活的真諦,那便是愛(ài)。